The essential role of a
Parkinson’s carer
Carers — or caregivers — are an essential part of the team alongside healthcare professionals supporting individuals living with Parkinson’s.
Carers are often partners, family members and friends who are called upon to support a loved one.
For someone living with Parkinson’s, over time certain activities can become more challenging to manage alone. As a carer, you may provide them with support for everyday tasks, such as:
- Cooking and preparing meals
- Cleaning
- Managing appointments
- Driving or organising transportation
- Physical tasks that require manual dexterity (e.g. using scissors,
opening jars, etc) - In later stages, support with everyday motor tasks such as movement in bed, reaching for objects, showering or going to the bathroom.
As someone closely involved in the day-to-day care of someone with Parkinson’s, you may also expect to attend medical appointments, to discuss any changes or adjustment to their management plan, help keep track of diagnoses and medications, and provide emotional support.
If you notice new or worsening symptoms in the person you care for, encourage them to speak with their specialist or healthcare team to explore additional management options.
Access the Parkinson's symptom checklist below.
Stay organised and keep notes
Use physical or digital calendars to track medical appointments and medication schedules.
Document symptoms and any treatment side effects to have ready to discuss during medical appointments.
Take advantage of
available services
Find out what physical aids, home adjustments, and medical and support services are offered by the National Disability Insurance Scheme.
Plan for the future
Discuss long-term care options (such as full-time care, assisted living and hospice care) and make sure an Advanced Care Plan is in place so that the needs of your loved one are being met throughout every stage.
Communicate regularly
The types of assistance needed by someone living with Parkinson’s may change day-to-day and throughout the course of their condition, so open and regular communication is essential.
Learn more about Parkinson's
Educate yourself on the condition and the stages of Parkinson’s progression. Understanding potential symptoms will help you be better prepared to assist your loved one and recognise when to seek professional support.
Staying organised and informed is key to providing effective care and helping the person you look after receive appropriate support.
Watch out for burnout
Learn to recognise the signs of burnout, such as feeling more negative, apathetic or disconnected, or experiencing symptoms of anxiety and depression.
Seeking support from a trained mental health professional can be beneficial.
Exercise and sleep well
Getting enough physical activity and quality sleep is beneficial for personal health, and to keep up with a carer’s daily tasks. Aim to include regular exercise into your routine, and try to maintain a consistent sleep schedule.
Make time for yourself
Set aside some time in the week for personal breaks, spending time with friends and family, and pursuing hobbies.
Know when to ask
for help
Whether you need someone to pick up groceries, pet-sit, or just lend a friendly ear, building a support network of family, friends and neighbours in your local community can make a world of difference to your wellbeing.
Connect with others
Look for local carer support groups, either in-person or online, to find people you can share your experiences with and gain valuable insights from.
Parkinson's Australia
National advocacy organisation for Australians with Parkinson’s and their carers.
Local support groups
Call the Parkinson’s Australia National Infoline on 1800 644 189 to find a Parkinson’s carer group in your state or territory.
Carers Gateway
An Australian Government program that provides free services and support for carers. Visit the website or call 1800 422 737.
The Carer-Inclusive Workplace Initiative
Helps employers to make their workplaces more inclusive for employees with caring responsibilities.
People can be carers at any age. As carers under the age of 25 face unique challenges specific resources, support networks and services exist for them.
As a caregiver, your role is invaluable in enhancing the quality of life for those you are caring for.
By staying informed and actively engaging in their care, you not only help manage daily challenges, but also play a crucial role in identifying the progression of the disease and advocating for their needs.
Remember, you are not alone—seeking support for yourself and those you care for is essential.
- The Young Carers Network
Directs young carers to support pathways.
- The Young Carers Bursary
Offers financial assistance to carers aged 12 to 25 to help ease their responsibilities while studying.
- ReachOut
Provides mental health support for young Australians.
Download the guide to Advanced Parkinson’s
With information and support to help you and those around you, this guide is for anyone with progressing Parkinson’s. Learn more about your symptoms, care and management approaches so that you can access the right support.
AU-NEUP-250008. August 2025
